I finally decided to share Lilly's story with other AS Mom's. If you follow this link you can read about Lilly and if you snoop around a bit you can get a good impression of how broad the spectrum actually is.
http://www.aicardisyndrome.org/site/node/320
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Your post almost made me cry. The courage and perseverance you and your family have really gets me every time I think about it. You are truly a strong woman. I'm so happy for Lilly, going 4 weeks without a seizure! Hope all is wonderful for you all, and I hope the next 3 months go by fairly quickly. Miss you.
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