Piper and Lilly

So we went in today, because Piper has been peeing non stop..she's been through antibiotics..the pee was clear...she just pees constantly!! And I am talking every 15min. Long story short .. we got sent to advanced imaging... nothing is wrong with her kidneys...nothing is wrong with her bladder...NOTHING. They took some more blood, but what it boils down to is a pediatric urologist to see if he has anymore ideas.



WELLLLLLLL .. while I was waiting for Piper and Grandma to draw blood...I asked if Lilly's bloodtest came back. We had tested her last week for food allergies. WELL brace yourself.Lilly has IGA ... an immune deficeny that affects upper respiratory diseases. Normal levels are 40-90... low levels are 7. Lilly has 0!!!!!!!!!!!!!!!!!!! Now we know why she has been sick and in and out of the pediatricians office all winter long. I don't know much more yet until I meet with the Immunology doc overthere on Tuesday..but it looks like they can rule Celiac's disease out, but than she has no antibodies so it could be a false negative.



I think the next step is to draw more blood. Give her a pneumonia "vaccine" and see if she can build antibodies...if not... she has to get transfusions of them.



My friend said to me..."The Lord does not give you more than you can handle or sooooo much that you break." Well... today I am not sure that I can say that anymore.. cause I think I am breaking. It has been one heck of a week...from my Dad to biting ants...to a crazy landlord..to ped trips...to this.



My heart is bleeding for this child. It's like adding insult to injury. I gotta go to bed cause tomorrow is a new day..and we are heading to UCLA for ophthalmology testing.



Please keep praying for this baby. I know one thing.. she has more than one angel...otherwise she would have been in the hospital with pneumonia and who knows what several times over the winter... BUT.. something/somebody (incl Doc Jenet) kept her out of it.



Love, FranPS: Here is a link to the "disease/illness". http://www.vaccinationnews.com/DailyNews/May2002/SelectIgADeficiency.htm