Lillian Update ...

So this has been long coming.

I havent updated on Lilly Girl's status in a very, very long time. Simply because I am always busy and Lilly is always, always progressing.

Her seizures are much better. She had one the other day after her bath, but it was very subdued. It was very hard for me to figure out when it started and when it ended.

She can also roll now from front to back and back to front. She can bare weight on her legs and scoot when SHE wants to. We have also seen her do mini crunches a good indication that she wants to sit.

Also, we have been trying to work on getting a bathchair for Lilly. She of course is getting bigger every day and she's a slippery little sucker. SOOO I have been trying to work with CCS (California Children's Services) to get her a bathchair....BUT they decided Lilly wasn't eligible for the program. Sure sucks when you are so RARE that the govt can not put you into a category, so you too can receive help besides your SSI of $14.57.

As previously mentioned ... Mommy does not give up. I e-mailed Lilly's old neurologist down in San Diego and asked her for help. She said a certain program within our insurance should be able to help us. So currently Lilly's physical therapist and ECHO are working on getting Lilly girl a bathchair. Once we accomplish that... we will work on a seating system for Lillian.

I have also met with a LVN (sponsored by the regional center.) The big test comes tomorrow when I leave her alone with Lilly. I was very upfront with the company that sends the nurses. I told them I have 2 dogs, one of them a pitbull puppy (I know how some people are.) Anyways, they send me this sweet 70 yr old blk lady DEATHLY afraid of my dogs, especially Kala. I have never seen such terror in somebody's eyes EVER before.

If all goes well .. I will have her for 12 hours a week....which means my life will be much easier. I can go run errands with much more ease. Yay. Actually it's a little sad that I think running errands is fun. I need to think NAP, BATH, READING while she is here.

Anyways. We'll see what tomorrow brings. Let's hope she can handle it.