I finally decided to share Lilly's story with other AS Mom's. If you follow this link you can read about Lilly and if you snoop around a bit you can get a good impression of how broad the spectrum actually is.
http://www.aicardisyndrome.org/site/node/320
Friday, March 27, 2009
Sunday, March 1, 2009
Weekend.....
I am reading my "Bible Promise Book for Women" and am reflecting on the weekend before giving Lilly her meds.
This was one of those weekends (besides just being too short.)
It was a weekend of "gone" friends, new friends and friends.
Emily Dickinson said: "My friends are my estate." I am assuming meaning my rock and shoulder to lean on.
I am thinking of my friend Shantelle when I read Proverbs 17:17 (A friend loves at all times. A brother is born to share troubles) and 18:24 (A man who has friends must be a friend, but there is a friend who stays nearer than a brother.) That's my sister Shantelle... without her I'd probably go insane.
Than there is my new friend Angela .... she seems to have reason for anything reminding me of Proverbs 27:17 (Iron is made sharp with iron, and one man is made sharp by a friend.) We trade kids stories back and forth...and other things.. she really helps me through the day.
Than there was a old/new/still friend? I felt compelled to reach out to her, against maybe my better judgement, but than I read 2 Corinthians 9:7. Each man should give as he has decided in his heart. He should not give, wishing he could keep it. Or he should not give if he feels he has to give. God loves a man who gives because he wants to give. So I helped out a young mother with some kind words and just maybe she can make a turn for the better in many ways.
And than there was a "friend" who shall remain nameless...this person struck me with unkind words and the feeling that I don't deal with what GOD dealt me and that I do not love my children...and that person hurt my pride (and other things.) BUT...my little book says... Do not be wise in your own eyes. Fear the Lord and turn away from what is sinful (Proverb 3:7.) So I think that's the last we hear from that "friend."
Cause after alllll.... "...it is impossible to be in the presence of Jesus and not be changed." None of us have to qualify to be holy.
Fran
This was one of those weekends (besides just being too short.)
It was a weekend of "gone" friends, new friends and friends.
Emily Dickinson said: "My friends are my estate." I am assuming meaning my rock and shoulder to lean on.
I am thinking of my friend Shantelle when I read Proverbs 17:17 (A friend loves at all times. A brother is born to share troubles) and 18:24 (A man who has friends must be a friend, but there is a friend who stays nearer than a brother.) That's my sister Shantelle... without her I'd probably go insane.
Than there is my new friend Angela .... she seems to have reason for anything reminding me of Proverbs 27:17 (Iron is made sharp with iron, and one man is made sharp by a friend.) We trade kids stories back and forth...and other things.. she really helps me through the day.
Than there was a old/new/still friend? I felt compelled to reach out to her, against maybe my better judgement, but than I read 2 Corinthians 9:7. Each man should give as he has decided in his heart. He should not give, wishing he could keep it. Or he should not give if he feels he has to give. God loves a man who gives because he wants to give. So I helped out a young mother with some kind words and just maybe she can make a turn for the better in many ways.
And than there was a "friend" who shall remain nameless...this person struck me with unkind words and the feeling that I don't deal with what GOD dealt me and that I do not love my children...and that person hurt my pride (and other things.) BUT...my little book says... Do not be wise in your own eyes. Fear the Lord and turn away from what is sinful (Proverb 3:7.) So I think that's the last we hear from that "friend."
Cause after alllll.... "...it is impossible to be in the presence of Jesus and not be changed." None of us have to qualify to be holy.
Fran
Causes
I started a group on facebook...called Aicardi Syndrome...within 2 weeks we managed to get 257 people to join.
I am speechless. Keep them coming.... all these gorgeous AS babies out there need us to spread the word for them.
www.causes.com/aicardisyndrome
I am speechless. Keep them coming.... all these gorgeous AS babies out there need us to spread the word for them.
www.causes.com/aicardisyndrome
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